The Adorable part is easy--that's Emmett! He is so stinking cute and has easily won the hearts of all the doctors and nurses here.
The Good: Physically, E is doing very well. His numbers look good, his left ventricle is functioning well, and he is off nearly all of his meds. They are monitoring a couple things--some fluid that needs to drain and his left lung, which is a little collapsed due to another pocket of air that has formed--nothing serious and nothing to worry about.
The Bad: He just isn't our boy yet. Though he is awake (and has been since about 8:00 last night unfortunately), he isn't really interacting with us. He makes very good eye contact, but he is extremely leery of anyone that comes close to him (not that I blame him). He won't talk or move around much. He lets me hold him, but doesn't seem very excited about it. I know that this is all to be expected, but I can't help being sad that he is so distant. I just hope that someday he realizes that we are doing all of this out of love.
The Bright Side: We are here...with our baby. That is not the case for all of the families here. Some have to work during the day and come see their baby at night. Some have other children to take care of at home, so they can't be here to be with their little one. The more time I spend here the more I thank God for our many blessings...insurance, a stable income, a company that is willing to let Joe take all the time he needs here, and the most amazing and supportive family and friends that anyone could hope for. Thank you for everything.
4 comments:
Missy Emmett and Joe I would give anything to be there but I'm not. I don't know what to say to make you feel better other than God is watching over all of you, and he'll take care of you especially Emmett. LOVE YOU ALL SO MUCH. GRANDMA AND GRANDPA NEUHAUS
Don't be sad, Missy. I know it must be hard to have E feel so distant, but surely it's just the trauma of having his little chest opened up and then being sedated for those first couple of days having an effect on how soon he's back to himself. Before you know it, he'll be smiling and ready to play again. We're thinking of you and still hoping for a little smile for you for your birthday(s)!
Pam, Andy and Steph
Missy, From personal experience and from friends & family going through surgery, it takes a long time to get anesthesia out of your system. Up to a week. He may still be trying to feel normal again - trying to get back to reality. Could he tell you if he was in pain? That would be one of my concerns, especially if he's wary of people unknown coming and going. Otherwise, all you can do is give him time. His little body has been under extreme stress with the surgery and what his heart had to endure working so hard. Stress can cause you to physically shut down what is not top priority - to focus on what is critical. This could be another reason for his general lethargy.
Try to take each moment one at a time. It's so difficult, I know. Sometimes you have to tie yourself to the hospital chair to keep from running out the door. Each step is progress. Each step will get you and your precious child closer to home.
Thinking/praying for you.
Jane Taylor
What great news about his progress we are so happy to hear the good news. It is great to see him awake now and sitting up. He will come around soon and in the meantime, I am sure it just gives him comfort that both of you are there by his side. Love to you all. xoxo Mekaya sends big kisses and hugs to Emmett. Love, Christina xoxo
Post a Comment